How can we help if our loved one is affected by multiple sclerosis?

A multiple sclerosis (MS) is an autoimmune disease that attacks the nervous system, presenting numerous challenges for patients and their families. The lives of those suffering from MS are significantly affected by the disease, and the role of family members is essential in supporting the patient and assisting with daily tasks.

Discussion and Support

After the diagnosis of the disease, it is advisable for the family to have a discussion about who will take care of the patient and how they can support each other in sharing tasks. Managing MS requires not only medical support but also psychological assistance, as the disease places a mental burden on family members. Joint discussions help ensure that the burdens do not fall on a single person, thus avoiding stress and family tension.

Family members should gather information about the disease and available support organizations. Such communities often provide support, advice, and resources for families to better understand their situation and options.

The Importance of Care

Caring for someone with multiple sclerosis is a complex task that requires cooperation between the patient and family members. While continuously monitoring the patient’s condition is crucial, it is also important for caregivers to receive attention, as long-term caregiving can lead to fatigue and stress. Family members should understand that the disease affects not only the patient but also changes the lives of the entire family.

During the treatment of the disease, family members need to be aware of the financial burdens they may face and how to share responsibilities. Jointly made decisions help family members feel more comfortable in their situation, and the patient can feel safer as well. It is important for family members to be open to dialogue and not shy away from discussing difficult questions.

Various aids may be necessary due to the disease, which can assist the patient in daily life. Rehabilitation clinics can provide help in learning how to use these aids, thereby increasing the patient’s independence and quality of life.

Exercise and Active Lifestyle

Maintaining an active lifestyle is of paramount importance during the treatment of multiple sclerosis. The course of the disease and the individual situation of the patient determine the recommended level of physical activity. In every case, the patient’s current condition must be taken into account, avoiding excessive fatigue and accidents.

Aerobics and water aerobics have been shown to have beneficial effects on the condition of MS patients. Swimming, yoga, and tai chi are also favorable, as these activities strengthen muscles, improve balance, and increase flexibility. Physical therapy is recommended on a weekly basis and is often available through home care. Motivating patients to participate in physical activities they enjoy is also important, as this contributes to an improved quality of life.

In addition to exercise, proper environmental adjustments are essential. Rearranging the bathroom, kitchen, and stairways can promote the patient’s independence. To make the home safer, it is advisable to seek help from rehabilitation professionals who can assist in selecting appropriate aids.

Additional Information About the Disease

During the treatment of multiple sclerosis, it is important to pay attention to temperature changes. Those suffering from the disease should avoid overheating, so wearing breathable clothing and using air conditioning is recommended. In summer, it is advisable to consume cold drinks frequently, while hot baths, saunas, and sunbathing should be avoided, as they can provoke a flare-up of the disease.

Reducing fever and preventing infections are also of paramount importance, so vaccinations are advised. In case of fever after vaccination, it is important to use antipyretic medications. Additionally, the beneficial effects of BCG and influenza vaccinations have been proven, as they have reduced the number of relapses among vaccinated patients.

Nutrition also plays a significant role in the treatment of MS. A daily fluid intake of 2 liters is essential, as the disease often leads to dehydration. It is important to pay attention to the effects of dietary supplements, as some may influence medical treatment. Caffeine and green tea can help reduce fatigue but may also increase urinary issues.

Pregnancy and Childbirth

Pregnancy in women with multiple sclerosis generally does not carry a greater risk than in the healthy population. During pregnancy, the disease activity decreases; however, the risk of relapses may increase in the months following childbirth. It is important for women to stop immunomodulatory treatment 1-2 months before planning a pregnancy and to resume it after childbirth.

During childbirth, a pain relief method should be used that is comfortable for the patient. The use of spinal anesthesia is not contraindicated if deemed appropriate by the obstetrician and surgeon. Special attention should be paid to the patient’s mental state during childbirth, as stress can increase the risk of relapse.

Multiple sclerosis is a complex disease that requires a thorough understanding and appropriate support from family members. Cooperation, information gathering, and care are crucial for patients and their families to lead the fullest lives possible.